“What do you do?” It’s not an easy question for many of us to answer

“What do you do?” is the classic question that people meeting for the first time make small talk with. When I was able to work, this seemed like a natural question to ask and I was happy to share and to hear what others had to say. Since having to stop working due to myContinue reading ““What do you do?” It’s not an easy question for many of us to answer”

Side effects from medications can be as bad as the disease itself: Here are 10 solutions that work for me

Many of us who have autoimmune diseases have to take medications that cause a lot of side effects. You know those commercials that are on TV that talk about the drug for about 5 seconds and the rest of the commercial is spent listing the possible side effects? People wonder “Who in their right mindContinue reading “Side effects from medications can be as bad as the disease itself: Here are 10 solutions that work for me”

The disabled mom

When I was in remission, I worked really hard at anything that I did. My husband met me that way. We actually went to Australia for our honeymoon and went scuba diving in the Great Barrier Reef. It was the experience of a lifetime. I had ankylosing spondylitis already at that time but my diseaseContinue reading “The disabled mom”

Psoriasiform dermatitis. Don’t know what that is? Neither did I.

In April 2020, I noticed that there was a patch of skin that was dry and scaly. I saw a dermatologist and he prescribed a steroid cream and I used it twice a day, added on Vaseline at night and it still didn’t go away. There were days where it would look better because itContinue reading “Psoriasiform dermatitis. Don’t know what that is? Neither did I.”

You don’t look sick? Heard it, lived it.

This is one of the most passive aggressive things someone has ever said to me. It’s a question that always made me very uncomfortable especially since it’s formulated to be more of a statement question, you don’t look sick? So, is the person trying to say that I’m actually not sick because I don’t lookContinue reading “You don’t look sick? Heard it, lived it.”

The latest on COVID-19 Vaccines and the flu shot for the immune compromised

I recently participated in a webinar held by the Canadian Spondylitis Association. They are a really useful and informative organization if you’re newly diagnosed or want to stay informed about your disease. There’s even a link so that you can connect with a group near you. I am on their mailing list so that IContinue reading “The latest on COVID-19 Vaccines and the flu shot for the immune compromised”

How cannabis has helped my Ankylosing Spondylitis and my Primary Sclerosing Cholangitis

Cannabis has helped me tremendously in managing my illnesses. There are different forms of cannabis that can be used in conjunction with one another so it’s a myth if you think that you have to smoke in order to consume cannabis . Cannabis has come a long way which is why it has earned itsContinue reading “How cannabis has helped my Ankylosing Spondylitis and my Primary Sclerosing Cholangitis”

Going to an infusion: what to expect

I will never forget my first infusion of Remicade. I was so nervous the day I found out I was going to have to start a treatment plan and I was very nervous the night before my first one. Not too much has changed since COVID but there are some key differences worth mentioning. IContinue reading “Going to an infusion: what to expect”