PSC, a rare autoimmune disease

After what was almost a half a year of tests, I found out I had Primary Sclerosing Cholangitis (PSC). What triggered such tests? Abnormal liver blood tests. I was told they were really high and that I couldn’t be on any meds for my Ankylosing Spondylitis while the cause of this was investigated. I wasContinue reading “PSC, a rare autoimmune disease”

“What do you do?” It’s not an easy question for many of us to answer

“What do you do?” is the classic question that people meeting for the first time make small talk with. When I was able to work, this seemed like a natural question to ask and I was happy to share and to hear what others had to say. Since having to stop working due to myContinue reading ““What do you do?” It’s not an easy question for many of us to answer”

Bringing the invisible disease out of the shadows

I was diagnosed with Ankylosing Spondylitis (AS) when I was 20 years old which means that I was diagnosed 21 years ago. I was young and many thought too young for arthritis. When I told people I had Ankylosing Spondylitis they would hear me say arthritis and think of their grandparents and not fully understandContinue reading “Bringing the invisible disease out of the shadows”